The Disability History We Were Never Taught

I learned a lot of history growing up.

I learned about presidents.

Wars.

Industrialization.

Civil rights movements.

Political movements.

Major inventions.

Economic crises.

I did not learn that disabled activists occupied a federal building for nearly a month.

I did not learn about disabled people organizing against inaccessible public transportation.

I did not learn about the independent living movement.

I did not learn about disabled protesters abandoning their wheelchairs and mobility devices to move up the steps of the United States Capitol.

And I definitely did not learn to think of disability history as civil rights history.

That absence matters.

Because when disabled people disappear from history, accessibility starts to look like generosity.

Put disabled people back into the story, and you see something very different.

You see resistance.

Disabled people were never just patients

One of the easiest mistakes to make when looking backward is imagining disabled people primarily as people being cared for.

Patients.

Residents of institutions.

Recipients of charity.

People being treated by doctors.

People dependent on their families.

People being studied, diagnosed, managed, or rehabilitated.

All of those experiences are part of disability history.

But they are not the whole history.

Disabled people were also workers.

Parents.

Students.

Writers.

Veterans.

Community members.

Organizers.

Protesters.

And activists.

Long before the Americans with Disabilities Act existed, disabled people were organizing around employment, education, institutionalization, transportation, housing, and the right to participate in community life.

The disability rights movement did not suddenly appear in 1990.

The ADA was built on decades of organizing that came before it.

One law changed the conversation

In 1973, Congress passed the Rehabilitation Act.

Inside it was a relatively short provision called Section 504.

Section 504 prohibited disability discrimination in programs receiving federal financial assistance.

That was significant.

Disability was increasingly being framed not only as a medical or rehabilitation issue, but as a civil rights issue.

But there was a problem.

The regulations needed to actually implement Section 504 were delayed.

Years passed.

Disabled people had a law saying discrimination was prohibited, but they were still waiting for the government to put enforceable regulations into place.

Eventually, activists decided they had waited long enough.

The 504 protests

On April 5, 1977, disability rights protests began at federal offices across the United States.

In San Francisco, approximately 100 disabled protesters entered the federal Health, Education, and Welfare offices at 50 United Nations Plaza.

And they stayed.

For 26 days.

It became the longest occupation of a federal building in United States history at the time.

The protesters included people with many different kinds of disabilities.

Wheelchair users.

Blind people.

Deaf people.

People with other physical and developmental disabilities.

That mattered because disability activism had not always been organized across disability categories.

Inside the building, protesters had to create their own systems for surviving the occupation.

They organized food.

Medication.

Personal care.

Communication.

Interpreting.

Hygiene.

Media.

Logistics.

Community members outside the building helped keep the protest going.

The occupation itself became a demonstration of something disability activists had been saying all along:

Disabled people knew what they needed.

They were capable of organizing themselves.

And they were not asking someone else to decide whether their rights were reasonable.

The Section 504 regulations were eventually signed.

The National Park Service describes Section 504 as the first federal law to recognize disability as a civil rights category.

This was bigger than one protest

The 504 Sit-In is one of the most powerful moments in disability history.

But even that story can become too simple if we treat it as an isolated event.

The disability rights movement had been developing for years.

Disabled students were challenging inaccessible universities.

People who had lived in institutions were questioning why segregation was considered normal.

Independent living activists were building systems that allowed disabled people to live in their own communities with support.

Disabled people were demanding transportation they could actually use.

They were challenging employment discrimination.

They were building organizations run by disabled people rather than organizations simply making decisions for them.

Piece by piece, the framework was changing.

Disability was no longer only being discussed as:

What is wrong with this individual?

Activists were asking:

What is wrong with the environment that excludes them?

That question would reshape disability politics.

Then came the Capitol Crawl

By 1990, disability activists were pushing for comprehensive federal civil rights protections.

That legislation would become the Americans with Disabilities Act.

In March of that year, activists gathered in Washington, D.C.

At one demonstration, disabled protesters confronted the enormous staircase leading toward the U.S. Capitol.

Some left their wheelchairs and mobility devices behind.

They moved up the stairs using their bodies.

The demonstration became known as the Capitol Crawl.

Photographs and video from that day created an image that was difficult to ignore.

The building representing the United States government was physically inaccessible to many of the citizens whose rights were being debated inside it.

The ADA was signed several months later, on July 26, 1990.

The Capitol Crawl did not single-handedly pass the ADA. The legislation was the result of years of organizing, negotiation, advocacy, legal work, and political pressure.

But the Crawl became one of the movement's most enduring symbols.

We inherited the access without learning the activism

This may be the strangest part of disability history.

Most of us regularly encounter things disability activists fought for.

Curb cuts.

Accessible parking.

Ramps.

Elevators.

Captions.

Interpreters.

Accessible public transportation.

Workplace accommodations.

Educational access.

Anti-discrimination protections.

But many of us were never taught the movements behind them.

We inherited pieces of the victory while forgetting the fight.

And that changes how accessibility looks.

If you do not know the history, a ramp can look like a nice thing a business decided to provide.

If you know the history, it looks different.

It is part of a much larger struggle over who has the right to enter public life.

There is power in forgetting this history

When people don't know that access was fought for, it becomes easier to treat access as optional.

We hear accommodations described as expensive.

Inconvenient.

Unnecessary.

Special treatment.

We see inaccessible spaces and describe them as unfortunate instead of exclusionary.

We expect disabled people to improvise their way around barriers.

Find the back entrance.

Bring someone to help.

Call ahead.

Wait somewhere else.

Stay home.

Disabled people have been navigating variations of those messages for generations.

And disabled activists have repeatedly answered:

We are already part of this society.

That is what disability history teaches us.

Learning the history changed the way I see access

Becoming a wheelchair user changed the way I move through the world.

Learning disability history changed the way I understand it.

Those are different things.

My wheelchair made me notice the barriers.

History helped me understand why some barriers still exist and why others have been removed.

Now when I see a curb cut, I know it did not appear because society naturally became more thoughtful.

When I use an accessible entrance, I know people fought for the expectation that public buildings should have one.

When I see captions, accommodations, accessible parking, or disability protections, I see pieces of a much longer story.

A story built by people who organized.

People who protested.

People who sued.

People who refused to leave buildings.

People who demanded something better than pity.

People who insisted disability belonged in the conversation about civil rights.

That is the disability history I wish more of us had been taught.

Not because disabled people need another inspirational story.

But because we deserve an accurate one.

If this is the kind of history you weren't taught either, follow along with the blog. I'm continuing to dig into disability history, access, and the people who fought to change the systems disabled people still navigate today.

Next
Next

Everyday Ableism: When Mobility Aids Make People Uncomfortable